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The Ninth Annual Benny Wills Gala Dinner

This year's Gala Dinner will take place on Saturday 7 September 2019 at the Canberra Southern Cross Club, Woden.

Watch this space for further details.

Welcome to the Benny Wills Brain Tumour Research Program

The program commenced in late 2010, following the success of our inaugural fundraising event and is run through the Sydney Children's Hospital Foundation.

The Benny Wills Brain Tumour Research Program was established in memory of our beautiful son Benny, who lost his twelve month battle with Diffuse Intrinsic Pontine Glioma (DIPG) on Friday 11 September 2009.

When Benny was diagnosed with DIPG, we struggled to comprehend the fact that this disease was terminal at diagnosis and that was nothing that anyone could do to change this. It is unacceptable that there have been no significant improvements to treatment in over 30 years and that to date there has been limited funding to enable meaningful research to take place. With your support and the incredible dedication and work of Dr Ziegler and the team, we are working hard to change this.

Losing a child is something no parent should ever have to experience and our motivation in raising funds to support this program was and continues to be the hope that we can change the outcome for other children diagnosed with DIPG and spare their families from walking this path.

Out beautiful logo was designed by Benny, from a drawing he did of himself as a baby holding mummy's hand, and brought to life by our web designer, Bianca. The site itself was donated by Web123 to whom we are deeply grateful.

Please take the time to look around our site, read Benny's story and get involved in supporting this vital research in any way you can. Together, we can make a difference and change the outcome for future children diagnosed with DIPG.

Imogen and David Wills

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